When you think of rare diseases, it might surprise you to find out how common they actually are. It is currently estimated that 6 to 8% of the world’s population...
What if we didn’t have to wonder why?
Project Y supports a number of world-leading medical initiatives aimed at improving the lives of children living with rare diseases.Play video
1 in 12 children in Australia are living with a rare disease.
Thousands of children and families are waiting each day for answers. We’re here to help find them.
Project Y raises awareness and support to improve the lives of children living with rare diseases. Three life-changing initiatives that Project Y partners with, or delivers, are the Undiagnosed Diseases Program, Lyfe Languages and Pilbara Faces. Together, these initiatives are helping to provide much-needed answers and improve the lives of child children and families living with rare diseases.
The Undiagnosed Diseases Program brings together specialist doctors to help solve some of the world’s most challenging medical mysteries, offering hope and answers to thousands of families.
Lyfe Languages is a youth-driven initiative aimed at improving communication between Indigenous patients, families and medical professionals in order to provide the highest standards of care.
Pilbara Faces is a groundbreaking 3D facial analysis initiative helping to transform the diagnosis and treatment monitoring for Aboriginal children living with rare diseases.
Lyfe Languages was successfully launched on the global stage on Sunday 9th August 2020, as part of the International Day of the World’s Indigenous Peoples. With the project now established...
The Lyfe Languages Champions are a group of young Australians helping to translate complex medical terminology into a number of local Aboriginal languages across the country. Six languages are currently...
Since Pilbara Faces was first launched in 2017, it has already helped to solve a number of challenging medical mysteries in the Pilbara. With one third of genetic and rare...
Proudly supported by
- World Economic Forum
- National Centre for Indigenous Genomics (NCIG)
- 2019 International year of Indigenous Languages