“The silence surrounding this global endemic, affecting more than 300 million people, is increasingly being replaced by a roar”

Dr Gareth Baynam was invited to write a guest editorial by the Canadian Institute of Health Research (CIHR) for their Rare Disease Day communications based the on a a Project Y news article delivered by Lydia Almeida. Gareth outlines the importance of rare diseases (RD) and the severe unmet need faced by people living with RD.

The CIHR is Canada’s federal funding agency for health research. It collaborates with researchers and partner organisations to support innovations to improve health and better the health care system. It also works in partnership with global leaders in their field, facilitating cross-nation collaboration. CIHR’s special edition for Rare Diseases Day aims to bring visibility to RDs and the impacts faced by millions of people worldwide.

With 300 million people living with a rare disease, the issue cannot be tackled by one nation alone. Collaboration is crucial to developing an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

The editorial can be read here.

Back to news